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Longest Survivor of Adenoid Cystic Carcinoma

In this article, we will take a close look at Adenoid Cystic Carcinoma (ACC), a rare malignant tumor primarily affecting the salivary glands. We will look at the longest reported survival rates, the dangers ACC poses, and the current treatment options available. Additionally, we will discuss the success rate of these treatments and how the tumor stage can significantly impact the outcome.

Jakub Gwiazdecki

Author - Jakub Gwiazdecki

Fifth year medical student at the Medical Faculty of Comenius University in Bratislava.

Jakub used MediSearch to find sources for this blog.
MediSearch gives instant answers to medical questions based on 30 million scientific articles.

Longest survivor of adenoid cystic carcinoma

The longest survivor of adenoid cystic carcinoma described was a 77-year-old woman, who survived for 33 years. In her case, the cancer was diagnosed in Bartholin’s gland and treated. However, during the 33 years, it came back four times [1].

Another long survival is a patient surviving 25 years with an adenoid cystic carcinoma of the lacrimal gland [2].

What is the success rate of treatment of adenoid cystic carcinoma?

Generally, the survival depends strongly on the stage, excision margin, and the perineural invasion of the tumor [3, 4].

The 5-year survival rate of adenoid cyst carcinoma is 70 to 91% [3, 5]. However, the 5-year survival rate depends strongly on treatment [6].

The best outcomes are achieved by combining surgery and radiotherapy, with 77 to 94% of all patients surviving the first 5 years. The worst survival rate occurs when the patient is treated only by surgery. In such cases, only 44 to 53% live above 5 years after the procedure [6].

The 10-year survival rates are lower and range from 50 to 60% [6]. The 15-year survival rate is the lowest, with around 30% of all diagnosed living longer [7, 6].

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The long-term survival rates are low due to a characteristic late recurrence of the adenoid cystic carcinoma. Usually, around three-quarters of all tumors reappear within 10 years after treatment [7].

How does the tumor stage affect the success of adenoid cystic carcinoma treatment?

The stage of the tumor significantly affects the results of the treatment and survival.

Early-stage I and II tumors have a 5-year survival rate of 66 to 82%, while the advanced IV stage survival is 0 to 17% [8].

Moreover, tumors in advanced stages III and IV have more than six times more chance of regrowing, further affecting the outcome [9].

What is adenoid cystic carcinoma?

Adenoid cystic carcinoma is a rare malignant tumor, accounting for less than 3% of all head and neck carcinomas [10].

It primarily affects the salivary glands but can develop also in other glands [11, 12].

The adenoid cystic carcinoma occurs more frequently in women than men. The typical occurrence age is 50 and 60 years [13].

Adenoid cystic carcinoma is an aggressive tumor but has a slow growth speed [11].

It tends to spread along nerves and reappears locally after excision. Distant metastasis is also a characteristic of this carcinoma [11].

Why is adenoid cystic carcinoma dangerous?

Adenoid cystic carcinoma is dangerous due to its aggressiveness. The tumor invades its local environment, particularly the nerve tissues [14], making it difficult to treat it effectively.

Also, the carcinoma has a high recurrence, which can happen even years after initially successful therapy [10].

Another problem with adenoid cystic carcinoma is the high (20 to 50%) risk of metastasis. The tumor spreads to other tissues via the blood, particularly to bones and lungs [15].

The metastasis can appear even decades after the treatment of the primary carcinoma [16].

Additionally, adenoid cystic carcinoma often resists chemotherapy, making the therapy even more challenging [17].

Is there a definitive treatment for adenoid cystic carcinoma?

No - there isn't one definitive treatment for this cancer. Therefore, every adenoid cystic carcinoma case must be assessed best by a team of specialists.

However, the therapy usually involves surgery followed by radiotherapy [18, 19].

This combination is known to have the best treatment outcomes [18].

Chemotherapy is rarely used as adenoid cystic carcinoma is often resistant to this treatment [7].

At the moment, scientists are researching additional therapies for cancer, such as immunotherapy and target treatment. These therapies, though unavailable at the moment [20], can increase the effectiveness of adenoid cystic carcinoma in the future.

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